WDPCHS Newsletter - March 2020

. Posted in World Databse for Pediatric and Congenital Heart SurgeryHits: 541

We want to first acknowledge that this is a very unsettling time for the world right now, so we want to wish all of you the best and to be safe and healthy during these uncertain times. We will come together as a group and will be a stronger global community after this.

As we enter a new year, we would like to extend a ‘Thank You’ to all the members of the World Database for Pediatric Congenital Heart Surgery (WDPCHS) for your continued efforts and hard work in this important international project. The WDPCHS continues to grow each year; now with 68 hospitals in 22 countries enrolling a collective 27,470 surgeries. The WDPCHS Web Based Data Entry system has undergone a number of enhancements throughout 2019 and the beginning of 2020, including the ability to translate the data entry forms into languages other than English, monthly surgery count verification tables, and added question & answer options to data entry forms. All these changes are noted on our World Database Website as well as changes since our inception in 2017; World Database Website We will continue make enhancements to the web based data entry system in 2020 and we welcome all feedback and suggestions.

Sincerely,

James K. Kirklin, Database Chair
James D. St. Louis, Database Vice Chair/Secretary
Marcelo B. Jatene, WSPCHS President
Christo I. Tchervenkov, WSPCHS Executive Director

Group pic

 

World Database Committee 2020-2021

The World Database Committee comprises a group of individuals that have dedicated their time and effort to the mission of the World Database, both in action and submission of patients. The agenda of the committee, through conference calls and sessions held at WSPCHS meetings, will address and provide input into current database issues, while providing insight into future directions of the database. With increase in the number of requests for data and the analysis for this data for specific QI projects, the committee will also serve to review and approve such projects.

James Kirklin (Chairman)

Birmingham

USA

James St. Louis (Secretary)            

Kansas City

USA

Christo Tchervenkov

Montreal

Canada

Nestor Sandoval

Bogota

Colombia

Jorge Cervantes

Mexico City

Mexico

Kirsten Finucane 

Auckland

New Zealand

Richard A. Jonas

Washington DC

USA

Krishna Iyer

New Delhi

India

Rajesh Sharma

New Delhi

India

Sachin Talwar

New Delhi

India

B R Jagannath

Hyderabad

India

Aseem Srivastava

New Delhi

India

Sivakumar Sivalingam      

Kuala Lumpur

Malaysia

Hafil Abdulgani

Jakarta

Indonesia

Budi Rahmat

Jakarta

Indonesia

Zohair Al-Halees

Riyadh

Saudi Arabia

Felix Tsai

Riyadh

Saudi Arabia

Luis F. Caneo

Sao Paulo

Brazil

Marcelo B. Jatene

Sao Paulo

Brazil

Juan Leon Wyss

Santo Domingo

Dominican Republic

Hao Zhang

Shanghi

China

Alex Fong

Beijing

China

Haomin Li

Zhejiang

China

Jinfen Liu

Beijing

China

Nguyen Ly Thinh Truong

Hanoi

Vietnam

Yastaka Hirata

Shizuoka City

japan

Susan Vosloo

Cape Town

South Africa

Cheul Lee

Seoul

Korea

Mark Plunkett

Peoria

IL

John Myers

Hersey

Pennsylvania

Erle Austin

Louisville

Kentucky

Web Based Data Entry Updates-Version 1.0.7 (March 9, 2020)

Since the launch of the World Database, six updates have been released to the system. The development team continuously works to enhance the data entry website. We welcome all feedback and suggestions from sites and review these regularly with the database team for system updates.

The most recent revision is now live in the web based data entry system, and the updated forms, form manual, and appendices are available on the website; Data Collection forms. The biggest changes included in this revision are:

System Changes

  • All forms in the data entry system can now be translated into specified languages. A user will need translation permissions to be able to edit and submit any translation. Any user is able to view the translated forms in approved languages. Additional languages for translation will be forthcoming. If you would like to request a user account to perform translations, or request a specific language be added to the list of available languages, contact This email address is being protected from spambots. You need JavaScript enabled to view it.
  • Monthly Surgery Count Verification Table: When you sign in to the database, select the reports tab and a count of surgeries and deaths entered at your center is displayed. Please confirm that this information is correct on a monthly basis.

Form Revisions

  • Added question and answer options to the Follow Up form
  • Added question and answer options to the Demographics form
  • Added question and answer options to the Institutional Practice Details form

Bi-Annual Reports

The Bi-Annual reports have now transitioned from their current layout to a unique and user-friendly approach that has updated graphs and charts in addition to the tabular exhibits.

Additionally, we have begun the work to create a more modern and usable reporting platform that will provide an interactive way of looking at your data in real time. This new reporting system will provide a mechanism for you to compare your center against the aggregate in multiple ways, including advanced visualizations such as dual-axis line graphs, bubble charts, and others. Here are some samples of enhancements distributed in the last reports:

Bar chart

pie chart

Presentations from 2019

March

Haikou, China

Second Annual Chinese National Database

Clinical Outcomes Research Utilizing a Multi-Institutional Database “Lessons Learned"

June

Sofia, Bulgaria

ECHSA/WSPCHS 2019

World Database for Pediatric and Congenital Heart Surgery, Enrollment Efforts

June

Sofia, Bulgaria

ECHSA/WSPCHS 2019

Update Progress of the WDPCHS, Governing Council of the WSPCHS

June

Sofia, Bulgaria

ECHSA/WSPCHS 2019

Outcomes from the WDPCHS: Impact of Level of Economic Development

June

Sofia, Bulgaria

ECHSA/WSPCHS 2019

Congenital Heart Surgery Practice Patterns in High vs Low and Middle-Income Countries: an Analysis from WDPCHS

September

Shanghai, China

9th Shanghai Conference on Pediatric Cardiovascular Disease

World Database for Pediatric and Congenital Heart Surgery: Linkage to the Chinese National Database

November

Buenos Aires, Argentina

Congress of Sociedad Latina de Cardiologia Cirurgia Cardiaca Pediatrica

Outcomes Analysis in Congenital Heart Surgery The World Database for Pediatric and Congenital Heart Surgery in South America

November

Sao Paulo, Brazil

Heart Institute, University Sao Paulo Medical School

“Quality Improvement” Outcomes Analysis in Congenital Heart Surgery: WDPCHS

November

Bali, Indonesia

WSPCHS 2019 Regional Scientific Meeting

National History of ccTGA: the Fate of the Systemic Right Ventricle

November

Bali, Indonesia

WSPCHS 2019 Regional Scientific Meeting

Linkage Projects with National Congenital Heart Surgery Databases

Publications from 2019

The World Database for Pediatric and Congenital Heart Surgery "A Call to Service for North American Congenital Heart Surgery Programs. James D. St. Louis, Nick Timkovich, James K. Kirklin, Richard A. Jonas, Christo I. Tchervenkov, Jeffery P. Jacobs, Erle H. Austin, Kristine J. Guleserian, Susanna Lenderman, Mark D. Plunkett, John L. Myers, Viktor Hraska, Pranava Sinha, Marshall L. Jacobs, James E. O’Brien. Semin Thorac Cardiovasc Surg. 2019 Jan 5.

Proceedings From the 3rd Symposium of the World Database for Pediatric and Congenital Heart Surgery. St Louis JD, Tchervenkov CI, Jonas RA, Sandoval N, Zhang H, Jacobs JP, Talwar S, Halees ZA, Finucane K, Kirklin JK. World J Pediatr Congenit Heart Surg. 2019 Jul;10(4):492-498.

The World Database for Pediatric and Congenital Heart Surgery: A collaboration with the Registro Nacional de Cirugía Cardiaca Pediátrica. St-Louis JD, Cervantes-Salazar J, Palacios-Macedo A, Bolio-Cerdán A, Kurosawa H, Jonas RA, Sandoval N, O'Brien J, Tchervenkov CI, Jacobs JP, Kirklin JK. Arch Cardiol Mex. 2019;89(1):100-104.

Surgery Counts and Collective Counts

Tier 1 Surgeries: index surgeries with expanded data collection including surgery details, discharge, one year follow up, patient death

Tier 2 Surgeries: All other surgeries with minimal data collection

Surgery submission as of March 2020

  • 13,845 Tier 1 surgeries
  • 10,502 Tier 2 surgeries
  • 3,123 Total surgeries submitted batched submission
  • 27,470 Total surgeries

Interested in learning more about enrolling your hospital in the World Database, click the link below and complete the form. A database representative will reach out to you with additional information:
(http://www.uab.edu/medicine/wdpchs/learnmore)

How can I enroll my hospital?

  • Sign and return the WSPCHS Data Use Agreement and Participation Agreement.
  • At least one member of the institution should be a member in good standing of the WSPCHS.

Contact Us

James K. Kirklin, MD
DCC Director / Database Chair
This email address is being protected from spambots. You need JavaScript enabled to view it.

James St. Louis, MD
Database Vice Chair / Secretary
This email address is being protected from spambots. You need JavaScript enabled to view it.

World Database Sponsors

Current Database Sponsors

UAB KIRSO Childrens Mercy Hospital logo 300x69
ChildrensNationalMedicalCentre Logo 300x62 MCHfoundation 375x58

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